Epilepsy Deaths Register

Making every epilepsy death count



Reporting from outside the UK

The Epilepsy Deaths Register (EDR), works with many international partners to tackle Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy-related deaths, although registries outside the UK are limited.

If you live outside the UK, you may still register on the EDR.  However, you may also wish to contact the EDR team direct to find out if there is a registry, or any research projects within your country that you could provide information to.


For further information please email us at:  [email protected]



Who can register?
Expert Team