Epilepsy Deaths Register

Making every epilepsy death count




The Epilepsy Deaths Register works with international partners to tackle Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy-related deaths. 

You may be bereaved through SUDEP or epilepsy but not reside in the UK.  People who contact us from other countries often want to tell us about a death.  You can report an epilepsy related death to us that has happened outside the UK, but please email us first.  We will let you know if there is a national register in your country. 

Most countries do not have national epilepsy death registries.  If there is nowhere to report an epilepsy related death in your country we will keep your information safe. 

For further information please email us at register@sudep.org.

Who can register?
Expert Team