Or by
You can choose to withdraw your registration at any time
The Registry produces reports based on anonymised information, all names and identifying information is removed from any published reports.
SUDEP Action own and manage the EDR, but the confidential information provided is only available to the EDR team.
If you have any questions about the register; if you would like support to complete the questionnaire or, if you would like to talk to someone about your loss, please contact our team:
Tel: 0330 088 1220
Email: Contact our team