The Epilepsy Deaths Register for Ireland makes every epilepsy death count
If you are over 18 and know about a death in someone with epilepsy, you can provide vital information for research. Reports of a death can be provided by anyone who knew the deceased.
A death can be reported more than once, multiple reports will help to build a more complete picture of the lifestyle and choices made by the person who died. Family, friends, flat-mates, neighbours and colleagues may have different information that may not be known by anyone else.
You may be a professional who was involved in the care of the deceased, a doctor, nurse or coroner, your extra information can be very important to the research team.
Reporting from outside Ireland
The Epilepsy Deaths Register for Ireland works closely and is a collaboration with the UK Epilepsy Deaths Register. If you live outside Ireland you may still register via https://epilepsydeathsregister.org . However, you may also wish to contact the team direct to find out if there is a registry, or any research projects that you could provide information to within your Country.
We value your trust and your information will remain confidential. We do not disclose to anyone, even within the same family that information has been provided
The power of the Epilepsy Deaths Register for Ireland will increase with every report.
How to report:
Online: Complete our on-line registration form
By post: To request a printed questionnaire please either telephone or contact the team here
By telephone: Please call our confidential reporting line: 01 906 1868
You also control the future use of information you provide to the Epilepsy Deaths Register for Ireland.
If you decide to remove your information you can do so at any time by contacting the team.