Thank you to everyone who has provided information to the registered so far.
Below are some reports detailing the progress of the UK Epilepsy Deaths Register, which was launched in 2013.
2014 UK report
A summary of the report was presented at the Partners Against Mortality in Epilepsy (PAME) conference in Minneapolis.
Professor Henry Smithson and Dr Brigitte Colwell present findings of The Epilepsy Deaths Register.
Dr Rosemary Panelli, Professor Henry Smithson and Dr Brigitte Colwell present the development of The Epilepsy Deaths Register.
Epilepsy ranks in the top ten causes of premature deaths and is potentially avoidable. Many young and healthy people have lost their lives and in the UK more than 3 people die a day. SUDEP Action is working with research teams across the UK in a range of initiatives, but funds are urgently needed to take forward the research that is needed to provide vital evidence for effective prevention.