The Epilepsy Deaths Register for Ireland works with international partners to tackle Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy-related deaths, although registries outside Ireland and the UK are limited.
You may be bereaved through SUDEP or epilepsy but not reside in Ireland. If you live in the UK, you may report the death to the UK Epilepsy Deaths Register (www.epilepsydeathsregister.org). You can also contact the UK team to find out if there is a registry, or any research projects within your country that you could provide information to.
Most countries do not have national epilepsy death registries. If there is nowhere to report an epilepsy related death in your country we will keep your information safe.
For further information please email: [email protected]