Epilepsy Deaths Register

Making every epilepsy death count




The Epilepsy Deaths Register for Ireland works with international partners to tackle Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy-related deaths. 

You may be bereaved through SUDEP or epilepsy but not reside in Ireland. If you live in the UK, you may report the death to the UK Epilepsy Deaths Register (www.epilepsydeathsregister.org).  You can also report an epilepsy related death that has happened outside Ireland and the UK, but please email us first.  We will let you know if there is a national register in your country. 

Most countries do not have national epilepsy death registries.    If there is nowhere to report an epilepsy related death in your country we will keep your information safe. 

For further information please email us at support@epilepsydeathsregister.org.

Who can register?
Expert Team