Epilepsy Deaths Register

Making every epilepsy death count

Terms and conditions

Terms and conditions

When you access our website www.epilepsydeathsregister.org, or the content or services available via the site, you acknowledge that you have read and agreed to abide by the terms described below and you are deemed to have entered into an agreement with SUDEP Action. Please read these terms of use carefully before you start to use the Site. If you do not agree with these terms of use, please refrain from using the Site.

Information about us

The Site is owned and operated by SUDEP Action - SUDEP Action and SUDEP Action Scotland are the working names of Epilepsy Bereaved a Registered Charity No. 1050459 (England and Wales), SCO45208 (Scotland). Our registered office is 12a Mill St, Wantage, Oxon, OX12 9AQ. You can contact us at this address, by telephone on 01235 772850 or by sending an email to info@sudep.org

Accessibility

Anyone is entitled to view any non-password protected parts of the Site and to use for their own purposes the information contained therein, provided:

  1. It is used for information purposes only and for reproduction for personal use only and not for reproduction on any other website or for commercial gain.
  2. Any links created to the Site are notified to and approved in writing by SUDEP Action before they are created.
  3. No part of the Site is copied, stored in a retrieval system, or transmitted in any form or by any means to any third party without the prior written permission of SUDEP Action.

Copyright and trade marks

The Material is owned by SUDEP Action or its content suppliers and is protected by copyright, authors’ rights and database right laws. Unauthorised use of the Material including reproduction, storage, modification, distribution or republication without the prior written consent of SUDEP Action or, where applicable, the respective copyright owner(s) is prohibited.

The name Epilepsy Deaths Register and The Epilepsy Deaths Register logo are trademarks of SUDEP Action. Our trademarks may not be used in connection with any product or service that is not ours, in any manner that is likely to cause confusion, or in any manner that disparages or discredits SUDEP Action. Any other trademarks not owned by us which appear on the Site are the property of their respective owners, who may or may not be affiliated with or connected to us.

Disclaimer

The Site is intended to provide general information only and, as such, should not be considered as a substitute for advice covering any specific situation. Users should seek appropriate advice before taking or refraining from taking any action in reliance on any information contained in this website. So far as permissible by law, SUDEP Action does not accept any liability to any person relating to the use of any such information.

While SUDEP Action has taken every precaution in compiling this site, neither it nor any contributors to the Site can be held responsible for any action (or the lack thereof) taken by any person or organisation wherever they shall be based, as a result, direct or otherwise, on information contained in or accessed through this internet site.

SUDEP Action will use reasonable endeavours to ensure that availability of the Site will be uninterrupted and that transmissions will be error-free. However, due to the nature of the Internet, this cannot be guaranteed.

Target audience

SUDEP Action does not represent or warrant that the information accessible via the Site is accurate, complete or correct. SUDEP Action has no liability whatsoever in respect of any use which you make of such information except in the case of personal injury or death caused by the negligence of SUDEP Action.

The information provided on this website has not been written to meet individual requirements and it is your sole responsibility to satisfy yourself prior to using the information in any way for your purposes. Before making any decisions based on the information contained on the website, you are strongly advised to refer to alternative, independent sources of information to substantiate the basis for your decision.

Warranty and indemnity

The User warrants to SUDEP Action that it will not use the website, the material or any part thereof for any purpose that is in contravention of any applicable law or regulation or in a manner that will infringe the copyright, trademarks, service marks or other intellectual property rights of third parties or violate the confidence, privacy, publicity or other personal rights of others or in any defamatory, obscene, threatening or abusive manner or any other manner injurious to third parties. The User shall indemnify SUDEP Action, its employees and agents, harmless against all claims, liability, losses, damages and expenses including, without limitation, legal fees and costs arising out of or incurred as a result of any claims made, or litigation brought, against SUDEP Action, its employees and agents, as a result of the use by the User of the website, the material or any part thereof for whatever purpose, to the fullest extent permitted by law.

Limitation of liability

SUDEP Action hereby disclaims all warranties and conditions with regard to the material and any goods or services supplied in relation to the website, whether express or implied or statutory (including all implied warranties and conditions of merchantability and fitness for a particular purpose). In no event shall SUDEP Action be liable for any indirect, punitive, special, incidental, or consequential damages whatsoever even if SUDEP Action has been advised of the possibility of damages including, without limitation, damages for loss of use, data or profits arising out of or in any way connected with the use or performance of the website, interruptions or delays to the website, the provision of or failure to provide services, or for any information, material, goods and services obtained through the website or otherwise arising out of the use of the website, whether based on contract, tort or otherwise to the fullest extent permitted by law.

Third party websites

The Site contains links to websites operated by parties other than SUDEP Action. Such links are provided for the User’s convenience only. SUDEP Action does not control such websites, and is not responsible for their content. SUDEP Action does not warrant or endorse the material on such websites and the inclusion of links does not imply any association with their operators. The User is solely responsible for evaluating the accuracy and completeness of any information contained on the third party websites, and also the value and integrity of any goods and services offered by such websites.

Privacy and Data Protection

Our Privacy Statement can be read in full here.

Viruses

While SUDEP Action makes all reasonable attempts to exclude viruses from the website it cannot ensure such exclusion and no liability is accepted for damage caused through the downloading of viruses. Therefore, you are recommended to take all appropriate safeguards before downloading information from the Site.

Force majeure

SUDEP Action shall not be held to be in breach of its obligations hereunder nor liable to the User for any loss or damage which may be suffered by another party due to any cause beyond its reasonable control including without limitation any act of God, fire, storm, flood, lightening, disease, strike, trade dispute, act of terrorism, any act or omission of government or regulatory bodies or communications operators.

General

If any provision of these Terms and Conditions is held to be invalid, void or unenforceable, that provision will be deemed severable and the validity or enforceability of the remaining provisions shall not be affected.  These terms and conditions constitute the entire agreement between SUDEP Action and the User and supercede all other (prior or contemporaneous) communications and proposals, whether electronic or written, between the User and SUDEP Action.

Any failure of SUDEP Action to exercise or enforce any of its rights under these terms and conditions shall not be deemed to be a waiver of any such rights or operate so as to bar the subsequent exercise or enforcement or any such rights.

Jurisdiction

The terms and conditions and the use by the User of the website shall be governed by the laws of England and Wales and the parties hereto submit to the exclusive jurisdiction of the English courts in all disputes arising out of or relating to the website and/or any transactions made on the website, or these terms and conditions.

Concerns

If you have any concerns about the material which appears on our site, please contact us at the address above or via: info@sudep.org

Privacy and cookies

Please see our privacy policy.

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