Epilepsy Deaths Register

Making every epilepsy death count

Reports & Research

Reports & Research

Thank you to everyone who has registered so far.  Below are some reports detailing the progress of The Epilepsy Deaths Register, which was launched in 2013.

2015 UK report

The 2015 findings from the Epilepsy Deaths Register were presented at the International League Against Epilepsy (ILAE) British Chapter Conference in September 2015. See the poster below:

PDF iconFindings of the EDR 2015.pdf

 

2014 UK report

A summary of the report was presented at the Partners Against Mortality in Epilepsy (PAME) conference in Minneapolis. 


Professor Henry Smithson and Dr Brigitte Colwell present findings of The Epilepsy Deaths Register.

 

PDF iconFindings of The Epilepsy Deaths Register Poster

 


Dr Rosemary Panelli, Professor Henry Smithson and Dr Brigitte Colwell present the development of The Epilepsy Deaths Register.

 

PDF iconDevelopment of The Epilepsy Deaths Register Poster

 

Epilepsy ranks in the top ten causes of premature deaths and is potentially avoidable.  Many young and healthy people have lost their lives and in the UK more than 3 people die a day.  SUDEP Action is working with research teams across the UK in a range of initiatives, but funds are urgently needed to take forward the research that is needed to provide vital evidence for effective prevention.

 

 

 

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