Epilepsy Deaths Register

Making every epilepsy death count



The Epilepsy Deaths Register is owned and operated by SUDEP Action, registered charity 1164250 (England & Wales), SC047223 (Scotland). Epilepsy Bereaved (founded 1995) is part of SUDEP Action. Registered office is 18 Newbury Street, Wantage, Oxon, OX12 8DA.

The Board of Trustees meets at least five times a year and receives reports on The Epilepsy Deaths Register as well as the minutes of the steering group of The Epilepsy Deaths Register.

The Epilepsy Deaths Register operates in line with the Principles Underpinning the Register; Statement of Intent and by protocols on privacy and security.

Project Management Committee

Professor Stephen Brown, SUDEP Action

Jane Hanna OBE, SUDEP Action

John Hirst CBE, SUDEP Action (Chair)

Professor Mike Kerr, Cardiff University

Dr Lina Nashef, Consultant Neurologist, King’s College Hospital NHS Foundation Trust

Karen Osland, SUDEP Action

Professor Mark Richardson, King’s College, London

Professor Ley Sander, University College, London

Dr Rohit Shankar, Cornwall Partnership NHS Foundation Trust and Hon. Associate Professor Exeter Medical School.

Professor Sanjay Sisodiya, University College London

Professor Henry Smithson, University of Cork, Ireland

Register Team

Jane Hanna OBE

Karen Osland

Tracy Cowdry

Project Lead

Jane Hanna OBE

Academic Support and Analysis

Dr Rhys Thomas, Newcastle University


Who can register?
Expert Team