The Board of Trustees meets at least five times a year and receives reports on The Epilepsy Deaths Register as well as the minutes of the steering group of The Epilepsy Deaths Register.
The Epilepsy Deaths Register operates in line with the Principles Underpinning the Register; Statement of Intent and by protocols on privacy and security.
Project Management Committee
Professor Stephen Brown, SUDEP Action
Jane Hanna OBE, SUDEP Action
John Hirst CBE, SUDEP Action (Chair)
Professor Mike Kerr, Cardiff University
Dr Lina Nashef, Consultant Neurologist, King’s College Hospital NHS Foundation Trust
Karen Osland, SUDEP Action
Professor Mark Richardson, King’s College, London
Professor Ley Sander, University College, London
Dr Rohit Shankar, Cornwall Partnership NHS Foundation Trust and Hon. Associate Professor Exeter Medical School.
Professor Sanjay Sisodiya, University College London
Professor Henry Smithson, University of Cork, Ireland
Register Team
Jane Hanna OBE
Karen Osland
Tracy Cowdry
Project Lead
Jane Hanna OBE
Academic Support and Analysis
Dr Rhys Thomas, Newcastle University