Epilepsy Deaths Register

Making every epilepsy death count

Governance

Governance

The Epilepsy Deaths Register is owned and operated by SUDEP Action, registered charity 1164250 (England & Wales), SC047223 (Scotland). Epilepsy Bereaved (founded 1995) is part of SUDEP Action. Our registered office is 12a Mill Street, Wantage, Oxon, OX12 9AQ.

The Board of Trustees meets at least five times a year and receives reports on The Epilepsy Deaths Register as well as the minutes of the steering group of The Epilepsy Deaths Register.

The Epilepsy Deaths Register operates in line with the Principles Underpinning the Register; Statement of Intent and by protocols on privacy and security.

Project Management Committee

Professor Stephen Brown, SUDEP Action

Jane Hanna OBE, SUDEP Action

John Hirst CBE, SUDEP Action (Chair)

Dr Lina Nashef, Consultant Neurologist, King’s College Hospital NHS Foundation Trust

Karen Osland, SUDEP Action

Professor Mark Richardson, King’s College, London

Professor Ley Sander, University College, London

Dr Rohit Shankar, Cornwall Partnership NHS Foundation Trust and Hon. Associate Professor Exeter Medical School.

Professor Sanjay Sisodiya, University College London

Professor Henry Smithson, University of Cork, Ireland

Register Team

Jane Hanna OBE

Karen Osland

Tracy Cowdry

Project Lead

Jane Hanna OBE

Academic Support and Analysis

Professor Henry Smithson, University of Cork, Ireland

Brigitte Colwell, Senior Researcher, Sheffield University

About the Register

About the Register
Who can register?

How to Register

How to Register
Expert Team