Thank you to those of you who have supported the EDR from the start, especially all the bereaved families who turned their private pain into public purpose and made the register possible.
The Epilepsy Deaths Register (EDR) does not receive any statutory funding, although the work is vital to help reduce unnecessary deaths from epilepsy, improve the lives of those living with epilepsy and deliver better care and support after an epilepsy-related death
The EDR is endorsed by government, but in the UK there are no major funding bodies that fund registers or other essential infrastructure.
The register is funded by SUDEP Action through community fundraising and from small grants including an initial educational grant from Viro-pharma.
If you would like to support the EDR by making a donation, please contact the team